Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
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9 comments:
You and your family are loved beyond words sweet Noah!!!
Soooo glad I got to meet you in person today Noah! You weren't wearing the sunglasses but that was a good thing because I got to see your eyes when you opened them for a moment. Keep fighting tiger...and we will keep praying and loving! :-)
Keep up the good fight Noah. We are still thinking of you up here in B.C!!
From Donna... Enjoy Florida and your recovery! You are doing so well. Go you!!! Thank your Mum and Dad for keeping us all posted on how you are doing. D x
I am from Fl. And go to Suncoast Community Church. We are all praying for you. I just found your wonderful blog and I will keep reading and praying for you. Keep up the good work and keep your blog going, I love being able to hear from you . God Bless
Even though I don't know you and may never meet you on this earth, my family is praying for you many times each day, dear Noah! God is faithful, and He has provided wonderfully skilled doctors and nurses to care for you, and a loving family to nurture you. Know that you are loved by many, Noah!
Those sunglasses look like they may have been loaned to you by your awesome big brother, Lincoln. They become you! Glad you are relaxing in the Florida sun - we are all praying for you!
Oh Noah...your personality is already coming out. ;o) Tell mom and dad to spring for some sunglasses that fit better... ;o) Love you sooo much and continuing to say prayers for you and all your care givers. Love you champ!
Way to go Noah!!!! Keep up the good work. Stay strong little buddy. We are praying for you up here at NCCTK! Love you guys!
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