Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.

In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.

My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."


Sincerely, your pal,
Noah

P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.

Thursday, October 27, 2016



Good Morning!!! With help from my friends, I have lived to my 7th day, and not only that, it appears that I am on the road to living many more. My mama cried when she said 'good-bye,' but that just goes to show what a good mama I got. Dr. Kays, Dr. Snyder, and about eight of my other friends hung out in my room for a couple of hours. They put my liver, gall bladder and bowel back into my tummy. Saving babies like me is "all in a day's work" for them. But their "day's work" means a lifetime of smiles for me and my family. They deserve a boisterous round of applause. 
I did ask Dr. Kays, if I could get up and go play after my surgery. Of course, we all know doctors--he said 'No.' I can only watch TV and drink my TPN. He told me that he and I have taken a big step, but that I am not out of the proverbial woods yet. I still need to be weaned from my ventilator to see if I can breathe by myself. That will take at least one week or more. And then I need to learn how to eat and see if my tummy knows how to keep food inside. "Slow and steady," Dr. Kays always says. "Slow and steady." If I keep going the course that I'm on, then perhaps I could meet all of my friends one day! Your pal, Noah.

9 comments:

Anonymous said...

Praise the Lord! What fabulous news. We knew you could do it Noah! You are so strong and tough. Will continue to keep you in our prayers. So happy the surgery went well! Hugs to everyone. - Melissa, Lane, Grace, Tommy, Ellie and Sadie

Janet said...

Good morning Noah. No, what a great morning Noah. I'm sure we all cried along with your mama worried about you yesterday and we all applauded and thanked god for your amazing doctors, nurses and your strength once surgery was finished. I can't wait to meet you and watch all the adventures of your life. Prayers always. Janet

Unknown said...

Yay...Noah Noah Noah...crowd roars. You and your medical team are awesome. We will continue to pray for your healing.
Aunt Snookie and Uncle Grant

Unknown said...

Noah - you are a strong warrior! Rest sweetie. Tell Dr. Kays and Nurse Joy we think they're awesome! Looking forward to meeting you.

Unknown said...

So thrilled to hear about the surgery success! Sending love and prayers...

Mary said...

Yay! Yay! Yay! All your friends are jumpin for joy for our little pal!
Jesus loves you! Take it easy..listen to Dr. Kays, you'll be jumpin yourself before long!

Stephen & Mildred Broadwell said...

Wow, that is one impressive looking scar, kid. When you get older and people ask you where you got it, be sure to tell them: "I brought a gun to a knife fight." :)

Seriously, this is such an amazing outcome. We'll keep praying earnestly, but it's such a relief to know that Noah's going to be okay.

Unknown said...

We are all SO HAPPY!! Thank God!!We all knew you could do it Noah! Bless those doctors and nurses and especially you and your family!! Still praying for all of you from up here in B.C.

Tommy said...

Fantastic news Noah, you are a little fighter. Keep getting stronger by the day. You have superb support around you....Keep up the fight little man......best wishes from Ireland.