Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
11 comments:
Praying for you and your family Noah, all things are possible through Christ.
Praying for you Noah! God is with you!
Thank you for the updates Shannon ! I'm anxiously following and praying for good things!
You look radiant Shannon - and little Noah is a good fighter! Our parish is praying for you Noah - storming heaven through every social network we can! Much love to you, your mom and dad! So blessed!! :-)
Hanging there Noah. There are so many of us praying for you. You have an awesome Mom and she loves you so much. Be strong little man!
Oh my you are so sweet and your Mum looks so in love! Praying for you all. D x
Continuing to pray and cheer you on Noah (and Mommy & Daddy) lots of love, Janet
Congratulations aunt Shannon. I love you guys, and miss you guys so much. When are you guys going to come back? Xoxoxoxoxoxo you guys. I wish you guys were here with us. Can you a picture of Johanna, Mckenna, Lincoln, baby Noah, you, Uncle Daniel all together? Last time, congratulations. I as a cousin, I can't believe that you finally made it to another baby. Just so you know I think Noah is a great name, you know that name Noah is from the bible. Xoxoxoxoxoxo.
Good job little man. Youre doing awesome. You keep doing what you're doing and let those big people around do their thing. I'm sure you're tired of all the wires and poking, but it's all to make you a strong and healthy little brother so you can run with your sisters and brother. God loves you little man and wove you into the tiny precious little person that you are. There's so many people that are praying for you, you'll probably never meet them all, but your mommy and daddy will tell you some day how your name touched the lips of sooooooo many prayers. See how special you are already. Soak in your mommy's and daddy's love. I'm so anxious to meet you and tell you that I was one of the blessed ones who got to place you in the hands of our Jesus every day. I'll check in tomorrow and see how you're doing. Have a great night little guy and get some good rest.
Good job little man. Youre doing awesome. You keep doing what you're doing and let those big people around do their thing. I'm sure you're tired of all the wires and poking, but it's all to make you a strong and healthy little brother so you can run with your sisters and brother. God loves you little man and wove you into the tiny precious little person that you are. There's so many people that are praying for you, you'll probably never meet them all, but your mommy and daddy will tell you some day how your name touched the lips of sooooooo many prayers. See how special you are already. Soak in your mommy's and daddy's love. I'm so anxious to meet you and tell you that I was one of the blessed ones who got to place you in the hands of our Jesus every day. I'll check in tomorrow and see how you're doing. Have a great night little guy and get some good rest.
Sending love and prayers. The original Noah was a survivor and so is your new little man.
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