Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.

In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.

My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."


Sincerely, your pal,
Noah

P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.

Sunday, October 23, 2016

MOVIE DAY!

I want to say 'good morning!' to all of my friends out there. And yes, it is always a good morning whenever I wake to see my mama. After an exciting night of flirting with the 'heavenly side' two nights ago, my next 24 hours were really boring. I said, 'Mama, wanna do something. How about we watch some tv?' 'No.' she said, 'No TV for you. Let's make a movie instead!' So to all of my friends out there, I would like to share a movie with you titled, Tiny Hero. I would also like to share two very short home videos of me. Tiny Hero is newly-released; its about my hospital and shows some of my CDH sisters and brothers-in-arms. If you have friends too, please share Tiny Hero with them. As a bonus, it stars my most favortist actor and actress: Dr. Kays and my nurse, Joy Perkins!

To watch Tiny Hero click: HERE

And just below the line are my two home videos.
Note: The Home videos do not appear if you running Internet Explorer 10 (Chrome, IE 11, and Edge work).


 

7 comments:

Anonymous said...

Oh wow! What a great team you have working with you. Glad you are being so big and brave Noah! D x

Unknown said...

Love all three videos...and beyond thrilled Noah had such a quiet day yesterday.

Debi Vinnedge said...

Noah you are just one amazing little boy! Glad your night was "boring" - mom & dad probably got a bit more sleep! I want you to know that I have a prolife organization, Children of God for Life and that makes YOU a member as a beautiful child of God. I asked the group to pray for you..that means thousands of prayers are coming your way! Keep fighting little tiger! :-)

Unknown said...

Noah baby...those were all beautiful videos. Thank you for sharing. You have a great crew that is doing everything possible to help you get stronger so you can fight through your struggles. We love you so much! Hang in there little buddy, we're all pulling for you.

Aunt Snookie ;o)

Anonymous said...

Keep it up dude!

Jenn Ryan said...

Noah you are so amazing! We are all praying for you up in the neighborhood. Sending love and hugs! The Ryans

Dan Klein said...

Keep on fighting, Noah, one day at a time becomes a lifetime. You have a lot of people - near and far - cheering you on. My little girl, Lauren, turned 17 on the day you were born. This weekend we celebrated her birth (a little late because dad was traveling for work) and checked in on you - so we also celebrated your life. Best wishes to you, mom & dad, Dr. Kay & Nurse Joy, and Johanna, Lincoln, & McKenna.
Your pal,
Dan