Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.

In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.

My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."


Sincerely, your pal,
Noah

P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.

Saturday, October 22, 2016

Fun Times For Me, Not For My Friends








Dr. Kays was right, the second day was a  roller coaster. Most of the day I was doing just fine, but then, about my bed time, things went absolutely crazy. My oxygen levels plummeted, as did my blood pressure. I would stabilize, then destabilize. My heart beat took off like a rocket, and I couldn't breathe very well. My chest was rising and falling like I was sprinting a marathon, but it was a race that I just couldn't win.

So, I got to try nitric oxide, which was kinda neat. And then, all of a sudden, I had seven of my friends in the room helping me! Dr. Kays was telling everyone what to do, and then he'd just stand still and think. Think, think, think, he did until finally he would adjust this knob or that knob or tell someone what to do. My good friends and my parents hung out with me for the entire night. In fact, Dr. Kays was such a good friend that he slept beside me until morning. What a guy! I'm pretty sure that everyone's hearts were racing as fast as mine, but in the end my heart and lungs finally relaxed and so did theirs; the sun rose over me, and I was able to live one more day. And what a day it was. And now, I'll try to enjoy yet another day. To my good friends out there, I do hope that you can do the same.

Friday, October 21, 2016

Hello to all of my friends out there. I spoke with my doctor today, and he told me that the next 24 hours are going to be very critical. Apparently, I'll really find out how well my lungs are oxygenating.  Yesterday was the 'honey-moon period.' Now the real test begins. I'll also find out how my other organs are working together. Everything will be changing from one hour to the next. I'm on a ventilator now, but if things go really poorly, then I may end up on a heart and lung machine. I'm tired of the tubes, so I'd like to avoid that if possible, but otherwise I'm going to have a great day with my mom! You should have a great day too!

Good Morning


"Good Day!" to all of my friends. How was your day today. Mine was great. I got to be alive all day today, so that's a good thing I suppose. It started fantastic because my dad got to deliver me! I'm glad he can catch. However, after the first 10 seconds of being born, things went down hill pretty fast. First, I couldn't breath. Then, I was surrounded by these weird creatures with blue hats and blue faces--lots of them. Can you say 'aliens.' I think so. And then, one of the blue people stuck a tube down my throat, and then a second one into my tummy. And then, a different blue person drove two more tubes into my belly button. I was getting a little irritated until my mom told me that the blue people are actually trying to help me. Hmmm? I have to say that I liked my mom's tummy better than the blue people. In the end, I lived my first day, so I can't complain. I had one close call, but was able to pull out of it.


October 21, 2016 - I'm Alive And One Day Old!


I want to say 'hello' to all of my friends. I am so excited to already have so many friends! I have been born now for only one day, and my mom tells me that I already have over 1500 friends, and some from Europe and even Saudi Arabia. That's a lot more than my dad, who has been alive for 37 more years than me and only has two! I want to thank all of you for your prayers. I needed them. It was a big day being born. I'll tell you more about it in my other posts above.

Thursday, October 13, 2016

October 17, 2016: My Family And My Hospital


That’s my family standing in front of the hospital; they’ll be helping me out. My dad’s name is Daniel; my mom’s name is Shannon; the girl on the left is my sister, McKenna; in the middle with me, is my older brother, Lincoln; my older sister on the right, Johanna, is wearing the yellow shirt. My birthday will be on October 20th! Don't forget to pray, and I won't forget to breathe.