Good morning to all of my friends! I never thought that it would happen, but I actually have made a new friend who lives in Australia: "g'day mate! I hope to meet you some day." But now to the sour news: when I first arrived at my hospital, Dr. Kays said that I was fat, but now he tells he says that I'm too skinny! He said "Noah, listen to me. Before you leave this place, I want you looking like the Gerber baby. Got it!?" I said, "What?!" "You know," Dr. Kays continued, "the picture of the fat Gerber baby printed on all the overly-expensive baby food jars. That's how I want you to look." I then said, "Dr. Kays, that is a fictional and idealistic image propagated by the 'Hollywood culture,' an image that is both unreachable and one that causes unnecessary angst among the common baby."
Dr. Kays neither appreciated that response, nor did I get very far with it. You know what he said. This is what he said: "suck up the pain kid and suck down the milk." My response after that: "Yes sir."
So, here is my initial dietary challenge: I need to eat 15 milliliters every 3 hours, which equates to 120 milliliters over a 24 hour period. Okey dokey, I'm pretty sure that I can make that happen. But here is the rub: I need to quickly get my "feeds" up to 60 milliliters every 3 hours. That equates to 480 milliliters over a 24 hour period! For those Americans that are metrically challenged, 480 milliliters equals 480 grams. I know what you're thinking: "four-hundred-eighty grams, how hard can it be?" Well, riddle me this: can you eat 20% of your body weight every day? I didn't think so. If you did, then it would be you who would be looking like the Gerber baby. But I guess, we each have to do what we each have to do--and for me, that means eating around the clock. Indeed, I've gotten to the point where I have learned how to eat even while sleeping (see right image).
Well my friends, I best be off. I have another meal to eat: bon appétit. Your CDH Pal, Noah Abner
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Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
Wednesday, November 16, 2016
NOV 16, 2016--Weight Training
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9 comments:
Okay Mr. Noah...first, your cuteness is off the charts! Second, eat baby eat!! Lastly, we love you and will continue to keep you in our prayers!!! Lots of love from MI little man.
We just checked the blog after a week and are all so delighted to see that you are doing so fantastically well - keep up the fight little man. Columba & family
Donna said... Sometimes I feel like I eat 20% of my bosy weight in a day - espeically on tough days. You have had your share of tough days so gobble, gobble, gobble - well it is Thanksgiving soon ;-)
D x
Noah you will start to love this eating thing! And you will probably barf up some of it but that's okay. All babies do that! But eat and be merry anyway. Next week is Thanksgiving and everybody overeats on that day. Next year, you will be chewing on a turkey leg or something! Enjoy! Praying for you cutie pie! (oops, another food you will enjoy - PIE!)
Noah....so happy that your newest challenge is eating. Before long you will have that down! In Dory's voice.....Just keep eating, just keep eating......;o) Keep up the great work and many thanks to your paparazzi. You are a bright and shining star in all our eyes.
Love you sooo much, Aunt Snookie & Uncle Grant
You are looking so good Noah! So amazing and perfect! Keep up the good work with the eating. You are so lucky to have weight to gain, most of us in America have the opposite problem! ;) love you little buddy! The Ryans
G! That A bunch for a little fellow !!!
Yay, such a big milestone :)
You've got this..... pretty soon you'll be running circles around your dad on the pitch! :)
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