Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
7 comments:
Noah I would tell your parents low BP is probably better than high BP - that's what happens to me when I get upset! Glad you are chillin' with all those toys - you do look pretty relaxed with that comfy green blanket! Keep fighting, tiger and I will keep praying!
Wow Noah! Thanks for showing us your "toys"! I think it won't be long before you get some "real" toys. Meanwhile, being relaxed is a good thing. Let the doctors, nurses and machines do their part. We, your friends will keep doing our part by praying and cheering you on little pal.
Tell your grandma I said "hi" okay?
You are loved!
Dear Noah, You probably don't know it, but you are a very handsome young guy! Thank you for all the updates, I thank Jesus along with everyone for your miraculous progress and am so looking forward to meeting you when your family brings you home.
Love and prayers,
Mary M
Hi Noah and Shannon and Family - this is Jonathan Biard from Microsoft in Rainy Seattle. Thank you so much for the wonderful blog updates, and I'm so thrilled to see all of the amazing progress! It probably feels a bit slow and uncertain at times, but know that God loves you all so much, and He has you all safe and sound in His love and caring arms. He is Bigger than even this situation. You are definitely in our prayers, and can hardly wait for the big party when you get to come home! Shannon - if there is anything that my wife and I could do to help your family, please don't hesitate to ask! We would be thrilled to help in any way we can. Prayers and Blessings - Jonathan
Keep working on that blood pressure Noah! We are still praying for you!
We didn't get to meet his new friend with the same name?!
Donna said... Sorry I didn't write yesterday but I was up seeing my Dad and family. Great thing to have a family that you love and that you love you. You know all about that little Noah as you are loved by friends and family all over the world. D x
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