Good Morning to all of my friends!! In my very short life I have already been blessed with hundreds of friends in over fifteen different countries, including friends from eastern and western Europe, the Middle East, and even the Far East. Life is tough as a CDH baby, and in order to finish the race, you need a good team. That team includes not only doctors and nurses, but friends as well. Sometimes a pat on the back or a pick-me-up is as helpful as a good dose of medicine. Every one of you has been an exceptional partner, but today I would like to specifically pay special attention to eight of my friends.
Here at my hospital, I have nearly one-hundred baby-friends that are having a difficult start to their lives. As we all know, we come into this world looking very very naked. Hospitals do their best to dress babies, but it is simply not their forte. Hospital clothes are like hospital food: borrrrrring. At least, that is what all the girl babies tell me.
Knowing this, my aunt extraordinaire--my Aunt Beth--organized seven of her knitting comrades and crafted several blankets and well over one-hundred hats for my friends here at John's Hopkins All Children's Hospital. So before I go today, I would like to thank my following friends: Aunt Beth from Ohio; Heather Price from Michigan; Kathryn Nichols from Minnesota; Ms. Ahlgren from Missouri; the Coogans from Maryland; Linda Fosdick from Virgina; Sarah Zyla from California; and Ms. Nicole Harres from Colorado.
"Its good to be naked, but its better to be naked with a hat on," so said every baby in a hospital. Stay warm my friends. Your CDH pal, Noah Abner.
P.S. I'll give a much-needed medical update tomorrow.
P.S.S. My dad refused to put my hat on because he didn't want to break Rule #1: don't wake a sleeping baby.
Hi, my name is Noah Abner Clark. During my 20-week ultrasound, I was diagnosed with a severe right-sided congenital diaphragmatic hernia. Essentially, my diaphragm failed to fully form, and thus, many of my abdominal organs (namely my liver), herniated into my chest which in turn inhibited the growth of my emergent lungs. The average survival-rate for babies specifically like me is around 50%--a proverbial coin toss. My mom and dad thought that perhaps in-utero surgery would be best, but they ultimately decided that for my case, surgery after my birth would give me even a better chance to survive.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
In order to find the finest care, my parents consulted with or actually visited many far-away places, including San Francisco, Houston, Cincinnati, Philadelphia, Denver, Baltimore, and Seattle. Ultimately, however, we decided to travel 3500 miles from home so that I could be born and live at Johns Hopkins All Children's Hospital in sunny St. Petersburg FL. My doctor is Dr. David Kays and my nurse is Joy Perkins. You should pray for them.
My road will be long, one potentially wrought with many setbacks and "close-calls." I'll do my best, but I would appreciate some much-needed help. So if you would, pray for me. And if I don't make it, still know that it is "well with my soul."
Sincerely, your pal,
Noah
P.S. You can learn more about what I'll be experiencing if you watch "Adam's Story"--a video my folks found while surfing the web. Right-click HERE.
P.S.S. Check back regularly to see my blog updates.
5 comments:
Noah you are so blessed to have such wonderful talented friends who know how to knit and crochet such beautiful things - for you and your friends! What a wonderful thing they have all done! You wouldn't want to wear anything I knitted, trust me! Sleep well little one...I am storming heaven for you everyday with my prayers.
Donna said... How cool is that!!! I think your dad was quite right. Here in Ireland it is raining today so I could do with one of those cosy hats. Well done to all of those lovely people who cared so much to take their time to look after you guys. You are surrounded by a team wishing you and your family warmth in more ways than one!!!). D x
Your father sounds like a very wise man. I thoroughly enjoyed knitting those hats for your friends in the NICU. Let me know if you or your friends would like more. PS: looks like you are doing very well.
Hi buddy, you look so comfy, smart dad of yours to not wake a sleeping boy. Praying without ceasing for you little guy. Looking forward to an update. And say hi to your brother and sisters for us with a wink.
Dearest Noah, Even with all you are going through, you are truly gracious for all the gifts you receive. That is an excellent trait for such a young man. Your parents are already teaching you to give back and that is really really special. We love you and continue to pray that God keeps his healing hands on you.
Love you baby! Aunt Snookie & Uncle Grant
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